About
App to track symptoms of your rare disease, communicate with clinicians and share info with rare disease community around the world
Our app helps patients and clinicians. For patients it helps to build a strong and supportive health-focused community, fostering knowledge sharing and mutual support. Contribute to Clinical Communications, Build Community #RareLikeMe is an innovative App that helps patients:
- regularly track and record clinical symptoms, health & wellbeing issues for their rare disease
- build and contribute to a global community of others with their rare disease
- reduce feelings of isolation and lack of information
- support self-advocacy when interacting with clinicians (GP / outpatient appointments / inpatient discussions)
Rare Like Me App also helps clinicians (Local GP./ outpatient appointments/ inpatient journey) by:
- addressing the universal problem clinicians face when patients do not offer daily or diarise all symptoms or experiences in between appointments.
- The app enables patients to be asked to provide samples on request for lab diagnostics, plus collate and provide a simple printed schedule of all tracked symptoms by type.
- In addition, to any qualitative freeform commentary is included in order to enrich the clinical information and patient experience.
Presentation Video
Code and Licence
Source code: https://github.com/timwis/rare-together
Contact
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